BigTent Member Log-In
Photo Gallery
Find Members Near You!
Donations & Fundraising
Featured Articles
Kammy’s Kause 2012
Please join us for Family Fun Day July 21st during our 2012 National Conference American Legion Park, Fortville, IN Information & maps available at conference Saturday, July 21 - 2:30p - 7:00p 2:30p Depart hotel 3:00p Arrive at festival 3:00p - 5:00p Festivities 5:00p Cookout 7:00p Depart for hotel Dinner and transportation will be … [Read The Rest of This Article...]
WHS Awareness Car Magnets – Reserve Yours Now!
We are now taking pre-orders for our new Wolf-Hirschhorn Syndrome awareness car magnets. A discounted price is given for orders of 3 or more magnets! CLICK HERE TO RESERVE YOURS NOW! … [Read The Rest of This Article...]
Participants Needed for Growth Research!
We want you to know about an opportunity to participate in a research study. Our group is collaborating with Drs. Amy Calhoun and John Carey at the University of Utah, co-chairs of our Scientific Advisory Board. As you know, most people with 4p- have significant growth problems. Therefore, the usefulness of standard growth charts for people … [Read The Rest of This Article...]
Custom 4p- & Wolf-Hirschhorn Jewelry Fundraiser
We're excited to announce a fundraiser with The Jewelry Chicks. Money raised through this fundraiser will be used towards our 2012 National Conference, specifically towards the sibling activities we have planned. Mention code CONF when you place your order. These custom made necklaces and keychains are receiving rave … [Read The Rest of This Article...]
Silly Safaris Show – July 20th
Do you want to get really close to some amazing animals? Would you like to touch some of your favorites? Then join us on a Silly Safaris Friday, July 20th during our 2012 National Conference. Amazon John, Coyote Chris and all of our other funologists are lively, interactive characters so unique and refreshing you will be amazed how they … [Read The Rest of This Article...]
Featured Sibling Articles
What are SibShops?
Sibshops acknowledge that being the brother or sister of a person with special needs is for some a good thing, others a not-so-good thing, and for many, somewhere in-between. They reflect a belief that brothers and sisters have much to offer one another — if they are given a chance. Sibshops are a spirited mix of new games (designed to be unique, … [Read The Rest Of This Article...]
Happy 17th Birthday Ryan!
*Article appeared in our November 2010 newsletter. By: Tom and Susan Bear Over the weekend, our middle son - Tyler was given a school Health assignment of bringing home a computerized baby and caring for this mechanical baby’s need. Latrisha, as he named her, provided a pretty regular schedule for our son, Tyler. In fact, he got the … [Read The Rest Of This Article...]
Devoted Siblings Are Honored
Carol wrote into Kathie Lee and Hoda on the Today Show to honor her two children, Alex and Rebecca, who have spent most of their lives supporting their brother, David, who has Wolf-Hirschhorn Syndrome. Broadway performer Capathia Jenkins performs a special song for the family. Visit msnbc.com for breaking news, world news, and news about the … [Read The Rest Of This Article...]
Siblings – How are we affected?
The following was written by Maria Sjodin, an older sibling to Leah Sjodin (4p-). Maria wrote the article for a Families Career Community Leaders of America in 2006. Thanks you for sharing this with us. I can say now that being a sibling of a child with 4p- hasn’t always … [Read The Rest Of This Article...]
Archive Articles
Is This Going to be Sad?
A “Wolf-Hirschhorn family reunion” is a time to share tears and laughter It wasn’t sad: Enjoying an impromptu get-together at the second Wolf-Hirschhorn reunion are (from left) Stephanie H., Wanda H., Christopher H., Craig R. (partial hidden), AJ G., Christine G., Justin F., Kelly G., and Brian J. When Craig Richardson was diagnosed … [Read More...]
4p- Photos and Captions Needed
The 4p- Support Group is attending the 2011 American Society of Human Genetics/International Congress of Human Genetics annual meeting in October in Montreal. This is a very big step for our organization! The ASHG/ICHG annual meetings are attended by over 6000 scientists/doctors/geneticists. Our goal is to bring greater awareness to 4p- Syndrome. … [Read More...]
